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The ACRU has a strong interest in advance care planning and end-of-life care. The Unit published a detailed report that explored current practice and opportunities to improve practice in advance care planning and other aspects of end-of-life care. The project involved interviews with managers of aged care facilities in South Western Sydney. The project provided important links into service development work within the Area Health Service.
The ACRU has also been responsible for developing a comprehensive area-wide program to promote advance care planning called My Wishes. This program includes policies, medical record forms, a wide range of information sheets and an informative website. The Unit has recently been funded to develop a nationally-focused website on advance care planning in dementia.
Publications
Fetherstonhaugh D, McAuliffe L, Bauer M, Shanley C. Decision-making on behalf of people living with dementia: how do surrogates decision-makers decide? Journal of Medical Ethics 2017; 43: 35-40.
Forero R, McDonnell G, Gallego B, McCarthy S, Moshin M, Shanley C, Formby F, Hilman K. A literature review on care at the end-of-life in the Emergency Department. Emergency Medicine International 2012, Article ID 486516. doi:10.1155/2012/486516
Shanley C, Whitmore E, Conforti D, Masso J, Jayasinghe S, Griffiths R. (2011) Decisions about transferring nursing home residents to hospital: highlighting the roles of advance care planning and support from local hospital and community health services. Journal of Clinical Nursing 2011;20(19-20): 2897-2906.
Shanley C, Russell C, Middleton H, Simpson-Young V. Living through end stage dementia: the experiences and expressed needs of family carers. Dementia: The International Journal of Social Research and Practice 2011;10: 325-340.
Shanley C, Whitmore E, Khoo A, Cartwright C, Walker A, Cumming RG. Understanding how advance care planning is approached in the residential aged care setting: a continuum model of practice as an explanatory device. Australasian Journal on Ageing 2009; 28: 211-215.
Russell C, Middleton H, Shanley C. Dying with dementia: the views of family caregivers about quality of life. Australasian Journal on Ageing 2008; 27: 89-92.
Shanley C, Whitmore E. Preparing for end-of-life in residential aged care. 2008. Aged Care Research Unit, Liverpool Hospital.
Shanley C, Wall S. Promoting patient autonomy and communication through advance care planning: a challenge for Australian nurses. Australian Journal of Advanced Nursing 2004; 21: 32-38.
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