Patient Reported Outcomes

Patient Reported Data collection at Liverpool Rheumatology Department

The Rheumatology department collects information about your clinical condition on forms that you are asked to complete before each visit to your doctor. This information is used to assist your doctor to understand how your illness is affecting you during your consultation.

If you consent for this information also to be used for research, it will be de-identified and entered into the department research database.

Click the below Participant information sheet for details about this research. You are under no obligation to consent to the use of your data for research. There will be no impact on the care you receive from any of the staff in the department if you do not consent to the use of your data for this purpose, but the forms will still be used to assist with your clinical care.

If you have any questions please ask the clinician looking after you or contact A/Prof Kathryn Gibson on 8738 4088 or by email at SWSLHD-LiverpoolRheumatology@health.nsw.gov.au 

PARTICIPANT INFORMATION SHEET  

Publications arising from this research are listed below.

1. Gibson KA, Castrejon I, Descallar J, Pincus T Fibromyalgia Assessment Screening Tool (FAST): Clues to Fibromyalgia on a Multidimensional Health Assessment Questionnaire (MDHAQ) for Routine Care J Rheumatol 2020 47(5):761-769 DOI:https://doi.org/10.3899/jrheum.190277

2. Gibson KA, Pincus T. Physical function in Rheumatoid Arthritis. In Scott DG, editor Oxford Textbook of Rheumatoid Arthritis: Oxford University Press 2020; 287-98 DOI 10.1093/med/9780198831433.003.0020

3. Wolfe F, Schmuckler J, Jamal S, Castrejon I, Gibson KA, et al. Diagnosis of Fibromyalgia: Disagreement between fibromyalgia criteria and clinician-based diagnosis in a University clinic Arthritis Care & Research 2019; pp1-9 DOI 10.1002/acr.23731

4. El-Haddad, C., Castrejon, I., Gibson, K.A., Yazici, Y Bergman, M.J., Pincus, T. MDHAQ/RAPID3 scores in patients with osteoarthritis are similar to or higher than in patients with rheumatoid arthritis: A cross-sectional study from current routine rheumatology care at four sites RMD Open 2017;3:1 e000391; DOI: 10.1136/rmdopen-2016-000391

5. Chua, J.R., Gibson, K.A., Pincus, T. Pain and other self-reported scores in patients with osteoarthritis indicate generally similar disease burden to patients with rheumatoid arthritis Clin Exp Rheumatol 2017; 35 (Suppl. 107): S88-S93.

6. Pincus T, Chua J, Bergman MJ, Gibson KA PROMs (MDHAQ/RAPID3) and Physician RheuMetric Measures. In El Miedany Y, editor Patient Reported Outcome Measures in Rheumatic Diseases Springer 2016; 59-99 DOI: 10.1007/978-3-319-32851-5_3

7. Gibson K.A., Pincus T.: The same multidimensional patient health assessment questionnaire used to assess RAPID3 in rheumatoid arthritis, osteoarthritis and other rheumatic diseases can provide quantitative clues to recognize and document comorbid fibromyalgia. Osteoarthritis and Cartilage 04/2016; 24. DOI:10.1016/j.joca.2016.01.817

8. El-Haddad C., Castrejon I., Gibson K.A., Yazici Y., Bergman M.J., Block J.A., Pincus T.: Disease burden in patients with osteoarthritis is as great as in rheumatoid arthritis at this time: Data from patients and physicians at 4 different rheumatology sites on 2 continents. Osteoarthritis and Cartilage 04/2016; 24. DOI:10.1016/j.joca.2016.01.390

9. Pincus T, Chua JR, Gibson KA. Evidence from a Multidimensional Health Assessment Questionnaire (MDHAQ) of the Value of a Biopsychosocial Model to Complement a Traditional Biomedical Model in Care of Patients with Rheumatoid Arthritis Journal of Rheumatic Diseases 2016;23(4):212-233

10. Castrejón I, Gibson KA, Block JA, Everakes SL, Jain R, Pincus T RheuMetric A Physician Checklist to Record Patient Levels of Inflammation, Damage and Distress as Quantitative Data Rather than as Narrative Impressions. Bulletin of the Hospital for Joint Diseases 2015;73 (3):178-184

11. Pincus T, Gibson KA, Block J Mortality-the neglected outcome in rheumatic diseases Arthritis Care & Research 01/2015; DOI: 10.1002/acr.22554

12. Pincus T, Gibson KA et al. Is a patient questionnaire without a joint examination as undesirable as a joint examination without a patient questionnaire? J Rheumatol 2014;41(4):619-21

13. Pincus T, Gibson KA, Shmerling RH. An evidence-based approach to laboratory tests in usual care of patients with rheumatoid arthritis. Clin Exp Rheumatol 2014;32(Suppl 85)

14. Callen J, Li L, Georgiou A, Paoloni R, Gibson K, Li J et al. Does an integrated Emergency Department Information System change the sequence of clinical work? A mixed-method cross-site study. International Journal of Medical Informatics 2014;83:12:958-966

15. Pincus T, Gibson KA, Castrejon I. Update on Methotrexate as the Anchor Drug for Rheumatoid Arthritis. Bulletin of the Hospital for Joint Diseases 2013;71(Suppl 1):S9-19

16. Castrejon I, Gibson KA, Pincus T. Efficacy and Safety of Methotrexate in Combination with Other Non-biologic Disease-modifying Antirheumatic Drugs (DMARDs) in Treatment of Rheumatoid Arthritis. Bulletin of the Hospital for Joint Diseases 2013;71(Suppl 1):S20-8